Update on Lucas

Lucas is going on 2 years now since his burn, which means the kids have been home for 2 years as well. WOW, 2 years!

So we are still going through a lot with Lucas, but they are doing a new surgery on the little guy that is really just phenominal. Basically they are cutting into his scars removing a large portion (1/3 of the total scar mass this time) then reaching under his skin and pulling the subdermal layers towards the cut and stitchinng these subdermal layers into the scar. What this will do is force the real skin to grow back and take over where the scar used to be.

keeping him quiet in the car

keeping him quiet in the car

So how does one keep a kid like Lucas quiet in a two hour car ride on the way to his surgery? GAME BOY TIME! You laugh but I wouldn’t know what to do witht hat kid if it wasn’t for the game boy and the in car DVD players…

getting dressed up

getting dressed up

I think the only part the kid doesn’t like is losing his underwear. It’s the same thing every time, he tries to talk us into letting him keep them on, and he keeps trying to find a new way to sneek them back on. Of course that just means we have to hide them and find something new for the little guy to do.

when the lights go dim we find a new way to amuse him

when the lights go dim we find a new way to amuse him

On this trip one of the monitors in the prep room was on the brink, yeah even UNC has crappy computers, so they had to kill the overhead lights  in the room. This meant the game boy was out of commision and he had to move on to new adventures. his varied form sticking stickers everywhere (what nurse in their right mind gives a little boy a box of stickers and tells him to go to town?) Luckily there was also some crayons and a coloring book and we were able to divert his attention from the stickers.

the aftermath

the aftermath

Several hours later and we find a very different Lucas, sedated, worn out, and devoid of any energy. Sick and delirious, a pitiful sight to behold. But he was very insistant that no matter how bad he felt he still wanted to go to Golden Corral (he gets to pick where we eat lunch on his surgery days) And as normal the nurses were fighting over who got to care for him, he is just so easy to deal with the nurses all love him.

the ride out

the ride out

He was also insistant that he gets to ride out of the hospital in the wheelchair. But he wasn’t so keen on the fact that we was going to be in a sling for a few weeks and have a tube with a suction bulb coming out of his arm for a few days.  This actually turned into a bit of trying to convince him for several days to keep his arm in the sling. No matter how much pain this kid is in you are not going to stop his fun.

But I am a awesome dad, and found a way to get the little guy to actually like his sling. TYE DYE!!!!!!!!!!!!!!  Yes that’s right, tye dye the sling then cover it in his choice of biker patches. He had his free reign of all my patches (I used to sell them) and he went to town making the sling his own.

stylin

stylin

and profiling

and profiling

So there you go, as you see he is up to his normal self, sans one arm. And yes I had to sew the sling closed to keep him from sneaking his hand out of the holes to use his arm. But he is doing well and loving life, and he LOVES his new sling.  Also as a little added slice of pie for his joy he is going to get to a special summer camp with the UNC burn clinic this summer for burn survivors. He is totally stoked and so excited to get to go to this summer camp.

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2 Responses to “Update on Lucas”

  1. Theresa Says:

    Oh my gosh! He is beautiful Avery. You are all so blessed. To have a family like you have with all the good the bad and the ugly, you certainly came out on top. I hope, no I know Jesus will continue to bless your family with showers of blessings. Thanks for the link, I love keeping up with Lucas, and now the church I am going to is so interested not in just Lucas, but the very Christian ways your family carries on with what life gives you. My pastor is so impressed with yours and Heathers faith, and how you live it for your children. Love you all

  2. He’s just so incredibly cute!

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