Archive for May, 2007

We Are Headed Home

Posted in family on May 23, 2007 by Avery

Today we get to leave the hospital.

He still has a long road ahead of him, we have to come back for a clinic next week, and to be checked out. but we get to go home and let the kid be “normal” again.

 It’s going to be really hard to adjust everyone to the new Lucas “lifestyle” as he heals, He is a boy, and acts liks a boy, and wants to be rough and tough like a boy, but he can’t. Not for a while anyways.

The docs say the trampoline will be good for him, so he gets to keep that hobby, but the soccer and contact sports have to go.

Right now our biggest obstacle is to figure out what we can do for pants for the little guy, the hospital gowns works well (they aren’t too tight on his burns on his butt) but obviously we want to move him to pants that look “normal” we just have to figure out what will work.

Thanks for all your prayers, support and cards, we still need them, but at least now we get to do the rest of the recovery at home, in an enviroment the kid likes, with food the kid will eat.

WE ARE GOING HOME!!!!!!!!!!!!!!!

Advertisements

Happy Birthday to Me

Posted in family on May 17, 2007 by Avery

Today is my birthday, 31 today. I guess I am really old now. Ugggg.

Lucas is having a really hard time sleeping, a really hard time, he can only sleep for a few hours at a time and then he is in so much pain he can’t sleep any more, and with his current meds he can only have meds every 4 hours. So please pray for him during the night, he really needs to get a good night sleep, as does Heather.

I’m hoping that one of my technophile readers can give me a really cool birthday present.

This was a recording of a recent ministry time. The video was shot via a DVD recorder, the audio was captured using a mic line going directly into the soundboard. The crazy distortion is the low tones on the djembe. When I wasn’t playing the recording is fine, but when I play it sounds like a half tuned in AM radio station. The house mix was awesome (Heather’s vocals were a little loud, as the dude on the soundboard turned her up in the beginning when she was praying, then left for the rest of the set) but the bass tones were shaking the trees in front of the Mackie’s (when I wanted them to, obviously I don’t play that way through the entire set) but the recording sucks. If the audio lines up (which sometimes YouTube doesn’t) you will see that when I play the bass tones is when the distortion happens.

OK, technophiles, how do I get a good mix so I can record one of our sets?

Posted in family, hospital on May 16, 2007 by Avery

Lucas is doing a lot better today. The doc’s called off the surgury for today, as two of the spots he said would require a graft have healed to the point they will heal on their own. The worst of the areas is at a point that it could go either way, but is leaning towards healing on it’s own. We should know in a few days what the prognosis is on that front.

 

His pain is lower, he is no longer on an IV, now he is only on oral pain killers. He is still a dope head most of the day but he is doing well. He is also sleeping a LOT during the day, which is a good thing as far as his healing goes.

Yesterday was Yosef’s birthday, we both went home for that as my aunt said she would sit with Lucas while we were gone. Unfortunately she called in the middle of the party to say she had changed her mind, thus Lucas was left alone for too long. He was/is very angry at his aunt, as I am, but he was fine and the nurses really stepped up to the plate and spent a lot of time with him making sure he was comfortable. As far as the party goes it was really nice, I was just suddenly very distracted and didn’t want to be there as my son in the hospital was all alone. Yosef really likes the bike I bought him for his birthday, and he had a blast at his party. Thanks to all the ladies that put it together for us.

He is being really good, and we are really without need here at the hospital thanks to a wonderful gift basket from the church (I love the bottled white tea) and hopefully we will be out of here soon. 

When we get home we will discover what our needs are, but we do know sun has just become one of our enemies. And this kid burns EASY. And of course we have a very outdoor oriented lifestyle, so I know we will need a pop up canopy. Specifically we need the pop up, as we need to be able to put it up and take it down in a jiff, and if I have to spend 30 minutes putting it together it will never be used.

But as we have a family membership to the pool, and he won’t be able to swim for a long time, but he will need to go with the other kids, we need to create shade for him in a shadeless area. The beach is the same way, and we go to the beach a lot (we are only 2 hours away) I found the canopy below that I love (especially for at the beach, it will be really easy to spot for the swimmers. But if someone has one they can donate it would save me the $150 (shipping) of buying a new one. I’ve put these up by myself before, it’s ricky but doable, but 2 people can have it up and secured in less than two minutes.

http://www.microfiber-products-online.com/blezst10cate.html

Lucas and Mom

Posted in family, hospital on May 15, 2007 by Avery

90% of the time, this is what I am looking at in the hospital.Of course this is better than the other 25% of the time I am trying to help calm him down as he is writhing in pain, or punching himself to cause pain so it doesn’t itch so bad.

I wish there was something we could do for the kid, but helping him sleep is good as the body diverts more energy to the healing process, and he doesn’t urt so bad when he is asleep. Pray for his dreams though, as they have been troubling him, strees, drugs, and massive pain will do that to a mind.

checking the e-mail

Posted in family, hospital on May 15, 2007 by Avery

Yes, the kid has us read every e-mail and blog post you write to him, he is very ornery about it even, but please keep it up.He got his first care package in the mail toady in the hospital. I’m not sure if it was more exciting for him to get mail here, or depressing for us that he is getting mail here. But his joy far outshadows the parental self doubt of how did we wind up here!?!?!?!?!?!?!

As this photo shows, for a few hours a day (when he is doped up) he is still Lukie Boy

Lucas, Saturday update

Posted in burn, family, hospital on May 12, 2007 by Avery

The kid is doing great today, we are expecting a phone charger and a cable to transfer our photos today, so I should be able to update you guys with a photo, not to mention answer the phone at some later point in time.

Last night he had a toatl meltdown when they went to do a throat culture. The nurse explained what he was doing, and he started to cry, we asked what was wrong with him and he said, and I qoute, “I’m afraid he will touch my epiglotis, and if he touches my epiglotis I will DIE!!!”

It didn’t help that the nurse, mom, and myself were on the floor rolling in laughter.

We have also discovered, via Lucas, that if he is in pain, if you blow on the line (a needle stuck in your arm for 4 days at a time to put in drugs) or as he calls it, the little blue thingie, well the blowing goes in the needle and to the hurt parts of the body.

Psychoscematic therapy at it’s best, but we aren’t going to fight it.

Yes, Lucas has become somewhat of a rockstar here in the burn ward, the stream of bikers that have come in in full biker gear, the comments the kid makes, the fact that he is in a fight with his mom to bring his blue hair die in so he can die his hair in the hospital, the fact that he is just generally so happy, yeah, the nurses fight over who gets this room, they all want to play with this guy.

Yeah, if you have a non chemical, safe, blue hair gel/die send it in, Heather is just worried about the die in the gel he has at home being bad when they wash his hair  when it’s washed and the fluid goes over his burns.

 He has been working on his stand up routine, I think it’s the captive audience.

The penicilin has worked wonders on the infection, his swelling is non existant today, and was terrible yesterday. The infection is no longer visable, it was spreading yesterday. Even his shoulder looks better today than it did yesterday. Most of the burned flesh is gone, and you can see where the new flesh is started to grow good, you can also see where it’s not, and where the surgury is needed.

The doctor was ver impressed with the burns today, he was surprised to see how much they improved with only one day of penicilin for the infection.

 God has been really good in this, as bad as it is we can definately see His hand in so much,

The other day a bunch of my Bikers for Christ brothers were in to pray with Lucas, they stopped in the hall way and prayed with the family next door, this was the last interaction this family had outside of the family before she passed.

Lucas has befriended some of the other burn victim kids, they are kind of copestetic together, they push each other to do better.

Then there is the people I have met in the McDonald House, it’s a great place to stay, but there is a lot of stress there, people die, the phone calss come in, they collapse where there are, you then try to comfort as best as you can.

Even the burn itself, it’s terrible, it’s a bad burn, but his head was covered in the oil, but it wasn’t burned at all. God’s grace. We are so thankful, that with how bad it was his head was spared, protected, from how bad it very well should have been.

Update on Lucas

Posted in burn, family, hospital on May 11, 2007 by Avery

Lucas is doing really good, his spirits are really high and he is doing everything he is asked and then some.

Unfortunately he is going to have to have surgery next week, at this point it is scheduled for Wednesday.  They will have to move some skin from his butt to his shoulder, the skin there was a 3rd degree burn, and huge, and isn’t healing at all, it’s getting worse actually

 Our spirits are as up as can be expected, we have a room at the Mc Donald house, very nice place actually.

We have had a lot of request for an address to send cards, we will be here for at least the next 2 weeks, so here you go:

Lucas Moore – Room 5405

C/O NC Jaycee Burn Center

UNC Hospitals

101 Manning Dr

Chapel Hill, NC  27514